Dia mundial de las enfermedades raras

“I participate in World Rare Disease Day .”

We can all participate in the Global Chain of Lights and Share The Colors of Rare Diseases!

In an effort of global solidarity, we invite you to illuminate or decorate your home, workplace or landmark buildings in your city with the Colors of World Rare Disease Day starting at 7 PM on February 28, 2023. The official colors are green, pink and purple. Since it coincides with the day of Andalusia, it is advisable to use green accompanied by pink or purple.

Rare Disease Day is the globally coordinated movement on rare diseases, working for equity in social opportunities, medical care and access to diagnostics and therapies for people living with a rare disease. Since its creation in 2008, Rare Disease Day has played a fundamental role in building an international rare disease community that is global, inclusive of all pathologies and diverse but with a common purpose.

Join the Global Chain of Lights this Rare Disease Day. Together we will illuminate our monuments, our public spaces, our buildings, homes, hospitals and more. These lights show our resilience and strength toward a brighter future. Together, we can improve the lives of the 300 million people around the world living with a rare disease.

What else can I do?

Participate on social networks by sharing your photos in the illuminated buildings using the hashtag #worlddayofrarediseases #AEIASW #Genetics-rarediseases and tag the associations, organizations or individuals you want to join the event.